My Valve My Voice 8.184.17

For individuals newly diagnosed with heart valve disease, caregivers supporting those with valve disease, or anyone seeking to deepen their understanding of symptoms and treatment options, the “My Valve My Voice” online community offers a valuable resource.

Upon registering as a member of the “My Valve My Voice” community, participants can engage with others who share similar experiences, creating a supportive network for both patients and caregivers. Membership grants access to a wealth of informative resources, including group forums, videos, survivor stories, educational opportunities, and much more.

The community focuses on sharing insights and experiences related to various pertinent topics, such as:

• Navigating the implications of a new diagnosis
• Understanding recent research and breakthroughs in treatment
• Preparing for surgical procedures
• Healing and recovery processes
• Training and empowering advocates and caregivers

Community members provide and receive essential support during challenging times. The knowledge that one is not alone can significantly impact the journey through diagnosis, treatment, and recovery, facilitating a return to an active life post-heart valve disease.

Heart Valve Voice US, a nonprofit patient advocacy organization, serves as a collective voice for individuals affected by heart valve disease. The organization advocates for early detection, meaningful support, and timely access to appropriate treatments. In collaboration with patients, clinicians, researchers, industry partners, and other advocacy groups, Heart Valve Voice US endeavors to enhance health outcomes for those living with heart valve conditions.